• Français

Members of the Users’ Committee

The Committee

The current Users’ Committee is comprised of height highly active members who are all either former users or parents of current or former users.

In addition to these members, many health professionals attend the Committee’s monthly meetings in order to contribute their expertise and share relevant information about their roles at the institution.

Members


Stéphanie Plourde

As the mother of five children, one of whom is gravely ill, I’ve been navigating the healthcare system for several years now. As a licensed practical nurse by training, I like to be there for my patients. At the end of the day, I like knowing that I’ve possibly made a difference for at least one person who really needed it.

In 2009, a little person came into our lives who taught us the true meaning of the word “courage.” Why, you ask? Because our treasure was born with several heart defects. And so began our great adventure: high-risk pregnancy; genetics clinic; fetal cardiology; intensive care; procedures, surgeries and clinics; nutrition; physiotherapy; ENT; hematology; hepatology, and the list goes on and on. There were several nights when we were terrified for his life! We learned to live with the constant fear of all the appointments, restrictions and lack of money because of all our hospital stays. But, more than that, we learned to live one day at a time, see the beautiful things in life, stop and smell the flowers, feel the sun’s warmth, be amazed by every little victory, and live in the present.  And, personally, I got to know myself a lot better. I discovered an inner strength I didn’t know I had and I developed a sense of compassion for my neighbour.

You know, when you have a child who’s different, you don’t always know how to help. My way of helping him is to join the Comité d’humanisation des soins aux soins intensifs [ICU Humanization of Care Committee] and the wonderful UC team. It makes me feel like I can help all the superheroes of this world, by being their voice, the person who will defend them, help them and stand up for them. Together, we can help the kids and their families overcome these challenges. So, yes, I believe in the UC! I believe that, together, we can change things, or at least improve them!


Steeve Mimeault

My teenage son, Raphael, a kidney transplant recipient, has been followed at Sainte Justine since he was just six months old.

My top priorities are being a partner in the care process and recognizing all employees at Sainte-Justine as caregivers.


Marc Labelle

I’m very proud to be a part of the CHU Ste-Justine Users’ Committee. Unlike many members of the UC, I was lucky that my child was healthy. And while she’s had to consult a few specialists in Orthopedic Surgery and Dermatology over the years, her good health is what inspired me to devote my time and energy to helping the wonderful Hôpital Sainte-Justine, whose love of children I share.

Since joining the UC in April 2017, I’ve put my communication and marketing background to work helping the Committee to become a key partner in the relationship between the user and the hospital. I was given the responsibility of chairing the Rayonnement subcommittee, with the main objective being to promote the UC and educate people about their rights as hospital users. Finally, in December 2017, I was elected treasurer of the UC.


Valérie Jean

I’m the mother of three amazing girls: Angélique, 10, Céleste, 6, and Félicité, 4. I’d never been to Sainte-Justine before working there as a research assistant in 2005. My first visit as a mother was in 2012, when I was around seven months pregnant. The ultrasound showed suspicious‑looking spots on the baby’s heart. And, then, like a bolt out of the blue came the bad news! We were told our baby had heart defects (tetralogy of Fallot with complete AV canal). She’ll have these defects for the rest of her life. The surgeries won’t cure her, but they will keep her alive and she’ll live an almost normal life. When she was born, we were dealt another surprise: she had no spleen. She’ll need to avoid certain bacteria and take antibiotics for the rest of her life. We’re learning to divide our time between the hospital and home, and to juggle life with two other children and one child who’s in the hospital all the time. We also suspect she has a syndrome that has yet to be diagnosed.

 

And that’s not all! Now we’re also worried about Céleste, after the doctor in Emergency who treats my baby noticed several spots on her body. We managed to get an appointment with a dermatologist. During the appointment, the resident went to get the dermatologist, who told us he thought she probably has a neurological disorder called neurofibromatosis. The meeting with the neurologist confirmed our fear. He did tests, which turned out to be negative. We were relieved, but even though the tests are negative, she could still have the disease. So, we still need to see the specialists every year.

In spite of ourselves, we can now say that we’re part of the Sainte-Justine family!

We’ve had great experiences and met wonderful people at this hospital, and we always feel safe when we’re here.

To make sure that continues to be the case, I decided to become one of the parents who joins the Users’ Committee.


Claude Ayerdi

On November 11, 2017, my daughter, Lucie Ayerdi-Bélisle, celebrated her first birthday.

On November 12, 2016, one day after she was born, Lucie developed several different symptoms and was transferred from Hôpital Saint-Luc to Hôpital Sainte-Justine after tests showed that she had heart disease. Nine days later, Dr. Poirier’s team at Sainte-Justine performed open heart surgery on Lucie.

Today, my daughter is completely cured and is living a normal life. Since the surgery, we’ve been to Sainte-Justine more than 20 times for postoperative follow-ups, Cardiology appointments, a meeting at the CINC, meetings in Occupational Therapy, a few visits to Emergency, and regular follow-up appointments in Pediatrics with Dr. Litalien.

I have a strong connection to Sainte-Justine; I’m very attached to this hospital, which saved my daughter’s life. And that’s one of the main reasons why I decided to get involved with the Users’ Committee.

Outside of my life as a mother, I’m a Resource Advisor at the Direction des bibliothèques de Montréal. I earned a Master’s degree in Library Science in 2010 and have been working ever since. I manage a wide range of projects for Montréal’s 45 libraries on a daily basis. I specialize in play in all its various forms, and the ways in which Montréal families incorporate it into their lifestyles. Over the years, I have also volunteered for several different organizations, in particular, as the chairperson of the non-profit Ludo‑Québec. I’ve also served as the vice-chair of the Salon du livre de Montréal for the past two years.


Véronique Roy

To come...


Morgan Pasnon

My 4-year-old son was diagnosed with leukemia in April 2017. So, now we’re going through daily treatments at the Centre d’oncologie Charles Bruneau. Since April, I’ve noticed certain things that could be improved or better explained to make the experience less unpleasant for the parents of sick kids.

In my professional life, I work on business transformation projects for a bank, improving processes and identifying ways to be more efficient and cut costs, and I wanted to put my experience to work by helping Sainte-Justine to improve the user experience.

Sainte-Justine is an excellent hospital with incredible specialists, but it’s still a large institution that’s faced with several challenges. My goal in joining the Users’ Committee was to help make things run smoother.


Raphael Mimeault

Sainte-Justine, over the years, became my second home. I grew up, learned, and became a better person. It taught me to understand before judging, to respect and especially to love. Throughout my life, it gave me is time, patience, care, motivation and above all love. Somehow it forged the teenager that I am today. Now, I have the chance to give back time, patience and love to this establishment. I wanted to take my time to give back and try to improve it with the best of my abilities, teenager abilities who loves his hospital. Sometimes in a house you have to make some changes, whether it’s repair or decoration. I would like to do the same with this hospital. Make it more beautiful, bring a touch of decoration. Sainte-Justine has decorated my life and I would love to give back what it gave to me when i needed it the most.

I would also like to defy the stereotypes that surround young people today. Those that said we do not give back enough to society, that we are lasy and that there is no succession. I would like to be this succession, the one who proves that we are able to give back and give time for a cause that is important to us, that affects us. I would like to prove that it is not because we are 16 that we cannot help, that we cannot bring positive things to a hospital.

I wanted to support the committee and all the time that the actual volunteer members are taking to make Sainte-Justine as we know it today. As they say, real heroes act in the shadows.

About this page
Updated on 2/22/2019
Created on 2/22/2019
Alert or send a suggestion
 

Every dollar counts!

Thank you for your generosity.

It is thanks to donors such as you that we are able to accelerate research discoveries, to heal more children every year and to continue to offer world-class care.

It is also possible to give by mail or by calling toll-free

1-888-235-DONS (3667)

Contact Us

514 345-4931

Legal

© 2006-2014 CHU Sainte-Justine.
All rights reserved. 
Terms of Use,  Confidentiality,  Security

Warning

All information contained within the CHU Sainte-Justine site should not be used as a substitute for the advice of a duly qualified and authorized medical practitioner or any other health professional. The information provided on this site is intended for educational and informational purposes only.

Consult your physician if you feel ill or call 911 for any medical emergency.

CHU Sainte-Justine